Who are the PARTNERS organizations?
PARTNERS brings together children, their families and the organizations listed above to improve healthcare and advance medical knowledge in the field of pediatric rheumatology.
Patients - pediatric lupus and arthritis patient families.
CARRA - The Childhood Arthritis and Rheumatology Research Alliance was created to ease research aimed at finding the cause and cure for childhood rheumatic diseases. Nearly every pediatric rheumatologist in North America is a member of CARRA. CARRA’s vision was to have every patient participate in research in some way. PARTNERS helps bring this vision to reality.
PR-COIN - The Pediatric Rheumatology Care and Outcomes Improvement Network is a network of rheumatologists, nurses, therapists, social workers and support staff at rheumatology centers who in partnership with families are all working together to transform how care is delivered to children with JIA. The aim of PR-COIN is to develop and evaluate specific disease management strategies to improve the care of children with JIA and to determine how best to incorporate these strategies into clinical practice. PR-COIN is creating a sustainable network that uses a registry database to measure performance, learn more about the health status of JIA patients as well as to inform future improvement projects.
Arthritis Foundation - The largest and most trusted nonprofit organization dedicated to addressing the needs and challenges of people living with arthritis.
Lupus Foundation of America - a nonprofit devoted to solving the mystery of lupus, one of the world’s cruelest, most unpredictable and devastating diseases, while giving caring support to those who suffer from its brutal impact.
Cure JM Foundation® - Founded in 2003, Cure JM Foundation is the only organization solely dedicated to supporting Juvenile Myositis research and improving the lives of families affected by JM. JM, which includes Juvenile Dermatomyositis and Juvenile Polymyositis, is a group of rare and life-threatening autoimmune diseases, with approximately two to four children in a million diagnosed each year. Cure JM Foundation’s mission is to increase awareness, provide support to the families battling this disease, and fund research into better treatments and an eventual cure for JM.