Help and resources for taking care of someone with a chronic illness while still taking care of yourself.
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Caregiving: What you need to know PDF Download
Use this toolkit for guidance, support and advice on caring for someone with lupus.
Build your coping with lupus toolkit PDF Download
Use this worksheet to reflect on strategies and behaviors you can use to overcome lupus challenges.
Medication and care tracker PDF Download
Keep track of your medications and care plan with this customizable care management tool.
How to get the support you need PDF Download
Use this tool to help you reflect on your support needs and identify people who can help.
Diet and nutrition with lupus
In general, you should always try to eat a nutritious, well-balanced, and varied diet.article
Financial help for children with lupus
Do you know of a child whose family needs help with his or her medical expenses?article
Preparing for unexpected events
If you need to act quickly, being prepared saves time and protects your loved one.list
Your lupus care file PDF Download
Use this document to keep track of specialists, preferred hospitals, insurance and medications.
Finding a new doctor
Follow these steps if you or your loved one are looking for a new doctor.article
Preparing for health emergencies
Keep a binder with these documents and a fully-stocked "to-go" bag in case of an emergency.article
Helping hands: Roles are redefined when you become the caregiver of a loved one
Many caregivers experience changing dynamics in their relationship when a loved one is diagnosed.blog
Lupus means more than textbooks can tell you
Lupus struck twice in Valentina Vergati's family, taking her younger sister's life.Personal Story
Organizations that offer support and resources to caregivers
The following organizations will offer further support and resources to caregivers.list
Caring for my loved one with lupus while caring about myself
Follow these self-care tips for caregivers to avoid feeling “burned out.”article
What you need to know about your loved one's health insurance
It’s important for you and your loved one to feel knowledgeable about your loved one’s coverage.article
How to help: A communication tool
Use this worksheet to help caregivers and people with lupus give and get the best support possible.article