https://resources.lupus.org/entry/lupus-connect-online-community

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LupusConnect online community

Lupus Foundation of America

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Isolation is a word we hear time and time again with regards to lupus. When you’re going through a lupus flare you can spend days at a time in bed, unable to leave your house and when you do, people don’t understand how sick you are because “you don’t look like you’re sick.” 

LupusConnect, a new online community launched by the Lupus Foundation of America, provides individuals with lupus and their loved ones with the opportunity to engage with others like them to share experiences, find emotional support and discuss practical insights for coping with the daily challenges of the disease.